Video: Give hope this holiday season

Ali Koide
Thursday, December 10, 2015

When his local hospital in Nevada said there was “nothing left to do,” Xavr’s family almost gave up hope. Donor support helped fly Xavr to our hospital and save him from liver failure. This holiday season, give hope and healing to kids like Xavr, Soraya, Hyrum, and Wyatt. Watch their stories below.

When his local hospital in Nevada said there was “nothing left to do,” Xavr’s family almost gave up hope. Donor support...

Posted by Lucile Packard Children's Hospital Stanford on Tuesday, December 15, 2015

Transcribed video:

Juan, Xavr’s dad: Xavr is a really outgoing kid. He likes to play a lot of sports, he likes to read a lot, he’s just really playful. He’s a really sweet kid.

He had pneumonia. They ran more tests and they determined that he was having liver failure.

Adelita, Xavr’s mom: When we called [the hospital in] Carson City they said, “Oh we cannot take him. If he needs a liver transplant, we don’t have the machines, we don’t have a donor.”

Juan, Xavr’s dad: They told us there wasn’t anything they could do.

Marlanea, Soraya’s mom: Soraya was born with hypoplastic left heart syndrome. And with all her conditions, I can’t work. We were actually homeless. We were sleeping in our car.

Zoie, Hyrum’s mom: Hyrum had some spots on his face and his hands. So we went to the doctor (in Monterey). The doctor called us back and said, “You’re going to go up to Stanford. This is beyond me and they’re going to take care of you.”

Shannon, Wyatt’s mom: Right away a specialist asked to see photographs of him. She came by to see him. She recommended we come to Lucile Packard. Shortly after they did the skin biopsy and within a couple of days they got the results back saying that he had mastocytosis.

Juan, Xavr’s dad: In four days it went from, “Your kid is not talking, not moving, he’s about to die,” to—they were able to get the liver to start working again.

Zoie, Hyrum’s mom: At about 7 a.m. my husband dropped me off, and I said, “I’ll see you in a couple of hours.” And by 10 o’clock Hyrum was getting chemotherapy.

Marlanea, Soraya’s mom: She has her own staff that she wants. She just starts naming off all the people that are supposed to just cater to her no matter what time she arrives at the hospital.

Shannon, Wyatt’s mom: We’re really lucky because I don’t think we would have had a diagnosis if we didn’t live here. They have the expertise that other hospitals don’t.

Zoie, Hyrum’s mom: This was exactly the place that we needed to be. There was no other place.

Juan, Xavr’s dad: If your kid has an opportunity, if your kid is going through this, [Lucile Packard Children’s Hospital Stanford] will be your last hope.  

You can make a difference in the lives of our patients and their families. Give the gift of hope and healing today.

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